We waited for so long...

We waited for so long to hear Olivia laugh, smile and giggle that I had to take a moment to capture her beautiful expressions today! Olivia is a fighter!! She has started PT and OT and is working hard to teach her muscles how to work effectively so that she can eventually sit up, eat correctly, and move around! We are in constant contact with her doctor's (I counted....she has a pediatrician and 7 specialists plus EarlyOn involved now - so many that I had to make a binder for all of the medical reports) and still trying to get EXACT diagnoses.


Olivia has come a long way, but still has a LONG way to go too! We have additional hearing tests (including a sedated ABR), an endoscope for GI/Reflux issues (to look at her Reflux and also to see if she is absorbing food correctly/rule out Celiacs Disease), a neurology appointment, and an appointment to consider getting her a helmet to correct plagiocephaly (flatness of the head) coming up in the next few weeks. Also, we'll be having a genetic consult with the geneticist on September 3rd. All of these appointments combined may just give us some LONG AWAITED answers. It has been a very overwhelming experience, but we have WONDERFUL doctors and nurses who are VERY knowledgeable and who also take the time to answer all of our questions. I bet they don't even know how appreciative I am of the multiple times they have all acknowledged the rough road Olivia has endured and the positive and caring way George and I are handling things!! On that same note, I also am soooo appreciative for my friends and family who let me cry, laugh, and just plain ol listen to me share stories and experiences.

Love to all!